I asked the parents in the kids with achalasia group on facebook, and it is definitely spasms. Several people said their children describe the sensation the same way.

I’m very grateful that Belinda doesn’t have them very often. I’m also grateful that they don’t last very long for her. She did say today that sometimes they last longer, like a few minutes, but still. One parent said their child has experienced them from an hour up to two days.

There is medication you can take that supposedly helps with it, but Belinda and I talked about it and she doesn’t think it’s at a point that should be medicated.

She’s also supposed to think about what she ate and drank before one, so she can figure out her triggers. She said she hasn’t had one since the dilation, so maybe that is helping.

I’m glad that she talked about it and now we know what it is. She was frightened that she was having heart problems, but now she doesn’t have to worry about that.

Oh, and bonus fun, the insurance through cobra seems to be working fine EXCEPT for prescriptions. Both pharmacies we use says that it says our insurance has been terminated since Oct. 31. Today I was on the phone with one of the pharmacies and also the insurance company. They were all nice but it’s apparently out of their hands. Insurance lady’s advice was to wait until tomorrow and see if the computers have caught up by then. Even though this is Day 14 of the coverage with cobra. The person at the pharmacy said that the office we paid for cobra coverage needs to contact them and tell them we are indeed insured. So now it’s back in Ben’s court, to deal with HR.

My speciality pharmacy prescription is now 7 days late. Belinda has one to pick up, and so does Lenora, and we can’t do it. It’s pretty bad that the cobra extension cost so much and it’s not even working correctly.