I got a response back from Children’s National yesterday and we scheduled a virtual visit with Dr. Kane on Thursday morning to see if we can come up with a new treatment plan for Belinda without the genetic testing results.

She did better yesterday and was able to keep more food down. Today she seems more cheerful.

The genetics testing company called me this morning for genetics counseling. It was mostly what to expect and they asked for permission to do testing for a wide variety of things as well, which I approved. More information seems good to me. I asked if the results could be expedited. She said right now Belinda’s results look to be back at mid to late April, but if her geneticist called them and asked them to expedite so the surgery could be scheduled, they would probably do that. So I sent Dr. Polan an email asking her to do that.

Hopefully things will move faster. But if we have to go ahead and have surgery without the results, I guess we’ll have to do that. I just wish everything would fall into place!

I did not call Children’s about getting the ng tube back in. On bad days, we want that. On good days, we don’t. It’s hard not knowing what to do.

I’m so thankful that she was able to get more down yesterday! Thank you to everyone for the prayers. <3