Things are going okay on the full liquid diet. I got some more explanation on what that is, so that’s good. Yesterday she actually got enough calories in! Today looks like it will go about the same because she’s eating around the same things. She also told me today that she hasn’t needed to cough anything up today or yesterday. That is like a balm to my heart. If she didn’t get surgery it would get even worse, but I am glad that she can still tolerate liquids all right if she doesn’t have solids in there. She said things are still getting stuck in there, but she is able to tolerate it and go slow.

So far she’s having:

Feeding tube shakes

Liquid-ish potatoes (I’m taking instant potatoes and mixing with beef broth (no water), then adding a LOT more broth, whipping cream, and butter until it is a pouring consistency, then adding gravy)

Pudding cups

Jello cups

Strawberry lemonade

Apple juice

Plum tea (this has no calories so I am meh about it right now)

Chicken broth

Ice cream bars (both ice cream with no mix-ins and chocolate are acceptable, since they are liquid at body temperature)

She dislikes the sour patch gelatin I got her, and the chicken bone broth. She agreed to try them again when she is on the clear liquid diet.

She also won’t even try the applesauce! But I’m glad that she is doing so well on this. Gotta keep her energy up for dance this weekend, and for the surgery! Her pediatrician said that if her body isn’t in starvation mode, she will heal faster and better after surgery, with smaller scarring. Even though her scars will be on the inside, keeping them small sounds good to me.

SIX days to go!