Cardiologist

Now that we have the POEM procedure done, we are taking a closer look at the Ehlers-Danlos. Her pediatrician referred her to a cardiologist, and they just called today and set that appointment for June 5.

It seems crazy that everything continues to happen but I just know this is real life and we’re experiencing it. I do think that her Ehlers-Danlos doesn’t seem to be affecting her very badly at this time, but I’m glad we know about it so she can be prepared in the future. The geneticist did not give me an official diagnosis but said I had the same thing, and so I am now trying to find out if this is the actual cause of all the pain I’ve had for so long.

Anyway, Belinda’s appointment is at Pediatric and Fetal Cardiology Associates, and I think that’s amusing because she has been annoyed that she goes to pediatricians and children’s hospitals for a while since they seem to be designed for little children and she is almost grown, and now she’s going to a place that also treats fetuses. I wonder what she’ll say when I point that out!

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