We went to Belinda’s pediatrician today. They are so good to her there, and they really listen. She said that since it’s only 10 pounds she’s not overly worried but wants Belinda back in a month. She wants Belinda to try to drink Ensure shakes or something like that. High calorie ones. Belinda hates sweet stuff like that and we’ll probably have to water it down to boot but we’ll see how it goes.

The ng tube makes it difficult for her to dance and she still has two competitions this season. A g-tube directly into the stomach is prone to infection and Belinda discovered the scar could look like a second belly button and she’s not okay with that.

The pediatrician is going to find a specialist in Ehlers-Danlos to refer her to, so we can make sure this is achalasia and not Ehlers-Danlos slow esophageal emptying. She mentioned a rheumatologist office she knows but also said we might have to go to Dallas or the Mayo. Mayo does televisits so that’s something.

We have to wait to see the cardiogist after we get a diagnosis of Ehlers-Danlos, from a geneticist or other doctor.