This week Belinda had a dentist appointment (no cavities, HOORAY) and then on Wednesday we both had appointments with the internist up in Tulsa. Belinda and I went by ourselves since Ben had work. We had not done this before. I was a little skeeved about taking the turnpike but then we got started late and that was the only option and you know what? It wasn’t that bad. It was actually a pretty nice drive. I wouldn’t let Belinda drive though.

Our internist is a wonderful person and a great doctor who really listens and cares. Her name is Dr. Miller and I found out about her in an Ehlers-Danlos group on facebook. We’ve been to her maybe 3-4 times. Belinda has been there more than me. We went every six months (we did virtual once though). And this was our last visit with her!

She’s such an amazing, awesome doctor that the Mayo clinic wanted her to lead their entire Ehlers-Danlos department in Jacksonville, Florida, and of course she had to take it. She will be able to work with EDS patients every day and will learn so much to help others with connectivity tissue disorders! I’m truly happy for her. But we’re going to miss her terribly.

And then what for us? I know there’s another doctor in Tulsa who works with EDS patients but I have read that his staff is hard for some people to work with. As a neurodivergent person, just considering that makes me extremely nervous. Then she remembered we live by OKC and asked if Dallas was too far to go. I said probably not, I mean, it’s two hours to Tulsa or three to Dallas, and she said that that’s where we need to go and she gave me some names to research.

I’ll also need to find out if my and Belinda’s insurance will be okay with us going out of state. There’s always a catch!

Anyway. I wish her the best of luck and I’m so glad we found her when we did so we could learn from her as we were starting out on this Ehlers-Danlos/POTS/MCAS roller coaster! Her influence will be lasting on us for many years to come.