Thirty days of gratefulness – A TV Show or Movie

Backdated…I really was behind there!

The prompt for this day is A TV Show or Movie.

Of course, we all have lots of TV shows and movies that we love and I suppose should also be grateful for those.

I’m going to say St. Elsewhere because that’s the show that Ben and I are binging right now. I saw it when it was on TV back in the day (and looking at the date, I guess I was like 7 or 8 and this is wildly inappropriate for that age, ha ha). Anyway, Ben hasn’t seen it and I only remember some details so it’s fun for me to watch too.

But I am super thankful for any show that Ben and I like to binge watch together like that. It’s nice to have that thing that we can relax and watch together.

So that’s it.

Thirty days of gratefulness – Favorite food

Backdated, ha ha.

My favorite food. This is weird because I’m not really sure what my favorite is. And since I lost most of my tasting ability to long covid, I’m extra not sure.

But..I know my favorite food is food I don’t have to cook myself! I don’t like cleaning up and am indifferent to cooking, but I don’t like having to plan meals anymore. My brain is tired and likes then other people plan the meals. Unfortunatley, I am the one who has to plan and execute most of the meals around here.

But this is about gratefulness, and I am so very grateful when I don’t have to do anything with the meal except eat it! I am very thankful for the times Ben or the kids have made meals for me. And I am thankful for the fact that we have been able to eat out many times in the past. Being able to relax with friends and family and enjoy a meal without any work is like heaven to me!

Thirty days of gratefulness – Three Small Things

I’m still backdating, but I’m pleased with this one. I don’t think I will write much.

The three small things I am grateful for are my three babies. Baby Lenora, Baby Bennett, and Baby Belinda, and the amazing adults (and almost adult) that they have grown up to be. I am so thankful that God saw fit to put these people in my life. I am blessed.

Christmas 2008

Back home!

We are back home from Washington. Belinda is doing very well. We did go to Cheesecake Factory last night and we got burgers. She did not order a veggie burger but that’s the server apparently heard, but she enjoyed it anyway. We both ate about half and took the other half to go. She also got the cheesecake she wanted. We walked back to the hotel and read and watched election results for a while, and ate our leftovers. She did great eating both times.

The next morning we got up and packed. We took our things downstairs and checked out. The hotel stored our luggage in a locked room while we went out into the city again. We walked to the White House for our tour. It’s self-guided now and didn’t take very long. She didn’t want to read everything and I guess I really didn’t either. We went to the National Archives next, since the White House didn’t take much time. The walk was pretty long and it was also hotter outside than expected. We saw the Declaration of Independence, Bill of Rights, and the Constitution. We walked to Chinatown next, and ate at a place Aunt Nancy recommended, Wok and Roll. I liked my sesame chicken but her teriyaki chicken was fantastic. Soup was very good too. We wrapped up our leftovers and got an uber back to the hotel, where we got our luggage, and then continued to the airport.

We got to the airport three hours early but it was really quite a big three days, and we were ready to just sit for a while. We filled our water bottles and I read and used my computer. She used her phone and played on her switch. She ate her leftover food too, and everything still went great. She had priority boarding again and this time we sat in the front seat with the extra legroom. It was a drag not getting to stow our stuff under the seat, and having to put it in the overhead bin, but the legroom was super worth it. I had my leftovers on the way home.

Ben was waiting for us at the airport, and he carried some of our luggage. Belinda wanted something sweet so went drove through Starbucks and she had a refresher and a cake pop.

It has been so nice to see her not choking even once since the procedure. I am so thankful and I pray that it stays in good shape for a long, long time…like forever!

It is great to be back home.

Thirty Days of Gratefulness – Something in Nature

Truth time, it’s actually Nov. 14 and I completely forgot about this project until yesterday, and then I promptly forgot again until today. I’m backdating it so it will flow properly but whatever, considering everything I am doing GREAT!

Something in Nature is the topic for Day 6.

I choose bodies of water. Isn’t it wonderful when you have a view of water? When I was growing up, my mother always wished that we had a pond on our property. My sister liked to sneak across the neighbor’s field and go to the creek near our house, and I went with her a couple of times. It was super nice to wade in the water and splash our feet into it.

And lakes are so wonderful too. To go out on a paddleboat, or fish, or even in a floatie, I have always enjoyed my time at lakes.

The ocean is magnificent, and somehow so strange how it goes all the way to the horizon. I like the ocean, but I am also a little frightened of it – of the magnitude, and the depth, and the things that lurk in the water that we can’t see.

When I was little, my parents would alwyas point out when we went over a lake or big river during car trips. I still do this for my children, even though they are grown. There’s something so lovely about serene about bodies of water.

So that’s what I’m grateful for.

Thirty days of gratefulness – A place that makes you happy

Day 5 – A Place That Makes You Happy

Well, I don’t need to write much about this one tonight. I am in the place that makes me the happiest in the world…HOME.

I am so thankful that Belinda and I made it safe to Washington DC and back home. I am thankful that the surgery went well and that she can eat easier again. And I am so, so grateful to be back home.

I know a lot of places make me happy. But this one makes me the happiest of all.

Waiting

Belinda is back in the operating room now. They said I should get to see her again in about an hour.

We took an Uber here and the guy was very nice, but quiet. That was fine with me because I like to be quiet too. Belinda and I pointed out things we saw on the way. When we got here, I didn’t understand how the elevators worked and an employee helped us but he seemed a little annoyed with me, sadly.

***My pager went off while I was writing this and the procedure went well and it’s already over!! She’s in recovery now and my pager will buzz one more time when I get to go to her.

Well, I wanted to recap what happened this morning so I’ll pick it up there.

I made a wrong turn upstairs and led Belinda through the cafeteria before we found the right direction, which was a shame since she couldn’t have anything to eat.

**My pager went off again and now I’m back with her in Recovery Bay 35. Maybe I’m not meant to recap the whole day. I’ll try to make things quicker.

So the lady was real nice when we got checked in. We got the pager then. It went off when it was time for us to go to registration. We got our bracelets from a coolo guy and then he said that the computer showed there was a $500 facility fee. I said that we were told we had met our deductible and out-of-pocket max and he said he didn’t know why it was on there so not to worry about it. We will see what that leads to.

They had a hard time putting in the IV again. The lady that everyone said was the absolute best tried and failed twice, and it took a long time and there was a lot of blood. So then they decided they needed an ultrasound to get it.

Dr. Kane and Dr. Petrosyan came by to visit about the procedure. It was great seeing them in person again. I am so thankful for their work. Belinda talked about her college plans and Dr. Petrosyan told her she could accomplish anything. He came from Armenia in 1991 when he was 16 years old and didn’t know a word of English. And now he’s a surgeon.

After they left, a lady I have talked with through the facebook group came over with her daughter, who also has achalasia and is having an endoscopy today. They are from California. It was great getting to visit with them and Belinda and the other girl exchanged phone numbers. It is good for both of them to know someone who truly understands. While they were there, the ultrasound team came in and worked on Belinda and finally got the IV in.

The other family got called back to prep for surgery, and it was time for Belinda’s procedure. That team was nice and asked Belinda what music she wanted playing. She jokingly said Ariana Grande and that’s what they played as she was being wheeled out.

They have a screen on the wall in the waiting room so parents can follow for updates. Belinda was number 15603. I opened my phone and saw that Belinda’s ACT test results were ready, so I pulled out the laptop to check that and to update people on facebook and by text.

Here’s the results that Dr. Kane showed me after.

**Well, now she’s gotten herself discharged! She’s changing while I’m desperately trying to finish this. Quick once it started!

When I got back here she was awake and talking to the nurse. She had a small bottle of water, a cup of apple juice, and an orange popsicle. We hung out and talked and she looked at her phone and I typed. Now she’s sitting up and she said she’s lightheaded. She said she shook her head to get the hair out of her eyes and almost fell over.

No food restrictions now. We have found a Cheesecake Factory close to the hotel, and that’s what she wants. She says she needs a piece of s’mores cheesecake immediately. So I guess that’s our next plan. Get back to the hotel and either dump stuff off or rest and then do it. I’d rather go to the hotel restaurant but she’s apparently too good for that.

Anyway, she just opened the curtain cause she’s ready to get out of here. But the nurse caught her because she’s supposed to leave in a wheelchair. So we’ll wait for that and then I guess I’ll call the uber and we will roll out!

Whirlwind

Just got a call from Jill at the hospital…they had a cancellation and Belinda needs to be the hospital at 10 am! That’s one hour and seventeen minutes from now. I need to get an uber ordered and she just got up and started getting ready. She can’t have anything to drink this morning now, but she will be done earlier so she won’t have to have clear liquid all day today! Jill said once she shows she can drink okay after the procedure, she can go back to a regular diet. I’m not sure what time the procedure will be, guessing noon here since we get there at 10. That’s 11 back in the OKC. Here we go!

Thirty days of gratefulness – Your favorite season

Your favorite season.

I’m glad this was the prompt for today. I’m pretty worn out already from the update about today, even though I just realized I forgot to put the pictures with it. I’ll have to go back and add those in a minute.

Of course my favorite season is autumn. I’m learning Norwegian, and the word for autumn is høst. That’s not really the point, but I learned that recently so I’m pleased to know it.

Fall always takes me back to the days of being new at Northwestern, meeting Ben, and starting our lives together. There’s so many wonderful feelings that go with the fall, like hayrides and bonfires and pumpkins and leaves falling. I was very happy when we were descending into DC to see the fall colors in the trees.

I’m not going to write much more tonight because I am awfully tired and I want to read a little. But I sure do like the fall.

Back in DC

Belinda and I are at the hotel in DC for the night. We are staying at Washington Plaza Hotel, just six blocks from the White House. The cost of the room was paid for the National Organization of Rare Diseases, which is a great blessing!

Ben took to us to the airport this morning and we got through TSA, then Belinda asked for Starbucks. I warned her it would be expensive at the airport, but then I went ahead and let her. She got the smallest sized chai latte, so it wasn’t that bad.

We were sitting at the gate when there was an annoucement that someoone had left their bag somewhere and it was with security. Belinda and I exchanged a look at that poor person’s plight. Then we noticed she didn’t have her bag! Turns out I thought she had taken it with her to Starbucks, and I came and followed her after a few minutes and left it there. But everything was in it safe and and sound and the security people smiled and thanked us for getting it. I’m glad we didn’t lose it!

Southwest gave us priority boarding again because of Belinda’s medical condition. I wasn’t sure we should do that since she’s not in a wheelchair or anything, but it was the best way to ensure we would be seated together, and I need to be there instead of a stranger in case she has choking issues. There was also a service dog on the plane that was a very good dog.

The flight was direct this time, and we didn’t have anyone in our row with us. That was very nice. I wrote my articles for the Tuttle Times and read. She looked out the window, read, and napped. It was a good flight. The pilot apologized for the turbulence early in the flight, when we were getting around the storms, but I really didn’t notice anything out of the ordinary. The flight attendants were super nice too. Just a good experience all around.

Belinda had apple juice and pretzels on the plane and she ate slowly and didn’t choke. She also had a few strawberries that I’d brought from home.

We got an uber to the hotel and the driver was very nice too. He was listening to hip hop and a Will Smith song came on while we were getting to the hotel and I took that as a good sign, since he is one of my all-time artist faves. Belinda didn’t recognize the song and said she only recognizes music by Ariana Grande.

Hotel is swanky and a doorman brought our luggage in and opened the door for us. Concierge is super sweet and helpful. She is going to print our White House passes for me, since I didn’t realize they needed to be printed until today. I finished up my stories and sent them while Belinda ate more strawberries. She did choke once, but went to the bathroom and it was okay.

Belinda wanted fettucine for dinner, and we found a little place about eight blocks away and walked there while the sun was setting. The place was pretty empty but the people were great and the food was too. It reminded us of the Chinese restaurant in Tuttle somehow. Belinda ate slow and didn’t choke. We also got cannoli to take back to the room which I’m looking forward to. We saw interesting architecture as we walked back and a church next door to the hotel had a group of people singing outside. We also saw a dog that looked like Bond from SpyXFamily.

(The church is the National City Christian Church. Wikipedia says it was built in 1930 and is the national church and cathedral of the Christian Church (Disciples of Christ).

We passed the Metropolitan African Methodist Episcopal Church on our walk, and I told Belinda how the Obamas had attended some services there. We also walked by the Saint Germain Foundation, and I informed Belinda I understood that was a cult. She’s getting so much learning here.

It’s only 7 pm but it feels later. I’m not sure what we’re going to do tomorrow. I didn’t expect the procedure to be at 5 pm so I didn’t plan anything for the morning. She said she might like to see the Library of Congress. She can only have clear liquids after midnight. I bought a box of the kind of broth she likes. There’s a fridge in here but not a microwave, so I don’t know what to do about that. Maybe ask downstairs? I do have a thermos.

Now she’s on her computer, looking to see if she has anything else due for her college classes. She’s got the inflatable wedge blown up so she can sleep (she can’t safely lie down flat anymore after her original surgery). This is the first time attempting to sleep on the inflatable wedge. I’m not optimistic but we couldn’t really bring anything better without a lot of hassle.

There were two complimentary bottles of water in the room when we got here, and she already finished hers and now she’s taken mine. Oh well, I still have water from the airport in Oklahoma City so I’m doing okay.

We’re looking forward to tomorrow. This procedure is basically a balloon dilation to open up the lower esophagus due to too much scar tissue forming after the POEM procedure surgery. This one is outpatient, so that’s great! I hope this helps for a long, long time.