Yesterday Belinda and I flew into Washington DC and today we went to Children’s National for her procedure. It was an endoscopy with possible dilation (they did that). We are here because she still goes to the pediatric surgeons that performed the POEM procedure for her achalasia.
So yesterday we got to the room and didn’t want to do anything. After a while we bundled up and walked to Domino’s and got pizza. Belinda did not wear gloves and her hands were so cold! I considered giving her mine and then I did not.
Beautiful view from our hotel room
This morning we called an uber and got to the hospital early. We went to see the chapel and the Healing Garden, which were underwhelming. But I’m glad I saw them because I had wanted to see them for a long time. There is allegedly something on the roof as well, but I wasn’t brave enough to try to find that.
We were in the waiting room for a really long time. I wrote a poem that didn’t rhyme, after an abandoned yellow crayon under a chair piqued my interest.
Waiting
Anyway, I made a bunch of notes of the day, mostly so I can keep the facts straight and remember which doctors and nurses worked on her (which came in very handy today with the phlebotomist).
Belinda told Dr. Kane that she had no symptoms and every thing was good and I told her to really tell him, and then she talked about how things were getting stuck sometimes and how she was having spasms. He told her that stress can make achalasia worse. So when she was unable to swallow in the cafeteria at school, that made her have to regurgitate, which made her even more anxious the next time. I am very thankful the school released her from the meal plan. I cook and freeze meals for her, and she makes herself an egg for breakfast every day.
Anyway. The nurse came and talked and talked. She was very nice but it was a long chat! We were both getting tired. Then the anesthesiologist came in, and he checked out Belinda’s veins and then she said not my hands, please, and he said what about your foot and she said sure and I DIED but he got it onthe first try and Belinda wasn’t even bothered. I felt nauseated but made it.
Shot in the foot time
Dr. Petrosyan came by to say hi. He and Dr. Kane are both her surgeons, and they performed the POEM together. Her last scope and dilation was also with them. Today Dr. Petrosyan was the surgeon who was doing all the emergency surgeries. We talked about languages a little with him. He knows Armenian, Russian, and English. He’s very smart!
So it took a bit longer because the consent form didn’t include the dilation, and so the nurse couldn’t let her go to the OR until that was fixed. So Dr. Kane fixed it, Belinda signed it. She was glad to get to sign it twice because she got her digital signature to look better the second time.
Dr. Kane said everything looked great and the dilation they did was very small, but they of course did it while they were in there. It looks like it went from 9.4 mm at the narrowest point to 12.0 mm. So that will be nice for her.
We got an uber back to the room and I had thought we might go to the Botanical Gardens this evening but she just wanted to order food and rest. So we got fettuccine and had it delivered. I’ve never done that before and the cost was horrible. Too cold to walk tonight though, and getting an uber would have been more expensive.
Tomorrow we are supposed to meet a senator in the morning. Then the art museum or library of congress or natural history. I’m letting her lead.
